Riley Mackenzie Norton's update blog
Riley is in the operating room, we just left him after they sedated him with versed. We expect the procedure to last 2-3 hours. He had a very restless night and threw up because he was so agitated. He'll be taken to the PICU for recovery where they'll keep him sleeping for several hours. Once he wakes up they'll try to get the breathing tube out as soon as possible.
Posted by Ken Norton at 3/21/2007 08:58:00 AM
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
4 comments:
We are all thinking about our buddy Riley. We are looking forward to you being home and a speedy recovery for him.
Lots of Love,
Paul, Lisa and Matthew
I am not going to put this blog in my bookmarks because I really hope that I won't be looking at it for much longer--meaning that I hope it goes well and that Riley's recovery is fast and uncomplicated. I am thinking about you all here in cold, cold Massachusetts....
We're thinking of Riley and willing him a successful and swift operation followed by a successful and swift recovery. Our thoughts and prayers are with you. Hope you're holding up ok.
All our love
Jude,Christian, Ruby, Elsa
We are thinking of you, Riley (and family!). Please come home soon and we can have a joyous playdate together.
love,
Cassidy (and family)
Post a Comment