Carter MacLeod Norton, a healthy boy, born on July 15th weighing 7 lb. 13 oz., 21 inches in length. We have pictures!
Sunday, July 16, 2006
Subscribe to:
Posts (Atom)
skip to main |
skip to sidebar
Riley Mackenzie Norton's update blog
Riley's profile pic
Riley's Medical Condition
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
Links
Blog Archive
- March 2018 (1)
- October 2015 (2)
- December 2014 (1)
- October 2014 (26)
- August 2010 (1)
- February 2010 (1)
- December 2008 (4)
- November 2008 (4)
- August 2008 (1)
- July 2008 (2)
- April 2008 (4)
- March 2008 (1)
- October 2007 (2)
- August 2007 (2)
- June 2007 (1)
- May 2007 (2)
- April 2007 (15)
- March 2007 (43)
- February 2007 (6)
- January 2007 (3)
- December 2006 (1)
- September 2006 (7)
- August 2006 (1)
- July 2006 (1)
- June 2006 (2)
- May 2006 (3)
- April 2006 (31)
- March 2006 (47)
- January 2006 (1)
- April 2005 (1)
- February 2005 (1)
- December 2004 (2)
- November 2004 (5)
- September 2004 (3)
- August 2004 (6)
- July 2004 (2)
- June 2004 (17)
- May 2004 (3)