Carter MacLeod Norton, a healthy boy, born on July 15th weighing 7 lb. 13 oz., 21 inches in length. We have pictures!
Sunday, July 16, 2006
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Riley Mackenzie Norton's update blog
Riley's profile pic
Riley's Medical Condition
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
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5 comments:
Congratulations! You all look fabulous!
(I'm not sure how I found you, but I have you bookmarked - our son, Sammy, is HLHS/DORV and goes in for his Glenn this week.)
Congratulations! He's a beautiful baby boy and he looks so cuddly!
We are glad you have a new son.
Bill& Eva
Congratulations! Found your blog through another heart kids blog. I actually clicked because my sons name is Riley too! He is 4 and heart healthy. My heart kid is Miles, 2, TOF w/PA. Anyway...What a beautiful set of boys you have!!! You have much to be proud of!
Becky
suggs.blogspot.com
Oh congratulations! He's beautiful! And Riley is looking GREAT too. Congrats on all the good news and happiness in your lives!
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