In my last post I forgot to mention that Riley's perfusion has greatly improved, his hands and feet aren't anywhere near as blue as they were yesterday.
Thursday, March 22, 2007
Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
Riley Mackenzie Norton's update blog
Riley's profile pic
Riley's Medical Condition
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
Links
Blog Archive
- March 2018 (1)
- October 2015 (2)
- December 2014 (1)
- October 2014 (26)
- August 2010 (1)
- February 2010 (1)
- December 2008 (4)
- November 2008 (4)
- August 2008 (1)
- July 2008 (2)
- April 2008 (4)
- March 2008 (1)
- October 2007 (2)
- August 2007 (2)
- June 2007 (1)
- May 2007 (2)
- April 2007 (15)
- March 2007 (43)
- February 2007 (6)
- January 2007 (3)
- December 2006 (1)
- September 2006 (7)
- August 2006 (1)
- July 2006 (1)
- June 2006 (2)
- May 2006 (3)
- April 2006 (31)
- March 2006 (47)
- January 2006 (1)
- April 2005 (1)
- February 2005 (1)
- December 2004 (2)
- November 2004 (5)
- September 2004 (3)
- August 2004 (6)
- July 2004 (2)
- June 2004 (17)
- May 2004 (3)
7 comments:
Great news. Maybe a smile will follow some time today.
Ruby says 'I love you Riley, please be better soon'. Elsa says 'I love you'.
Take care. We're thinking of you all.
Jude, Chris, Ruby and Elsa
let the good news keep coming!
mucho mucho love - honikmans
What great news! We are so happy to hear that his recovery is progressing on schedule. We are especially happy to hear that his drainage levels are down by a factor of 10! This seems to be a great sign that the fenestration is doing its thing in balancing pressures.
At this rate, he'll be up and around in no time - just in time to devour a fat-free-but-still-delicious ice cream cake. :-)
go Riley go. the Kraus family is sending love and positive energy.
Ken,
Glad to hear Riley is feeling better. He and your family are in my prayers.
East coast representin'.....
Everyone here is pulling for Riley.
Glad to hear he's turned the corner.
Great ! I am glad Riley is feeling better and I hope you all will be home soon ! Naomi wants to celebrate your birthday with you when you are home.
Joce
Post a Comment