On rounds this morning the doctors felt that Riley's condition has generally improved over two days ago but that it's still too early to know if he'll avoid additional surgery and/or a Fontan takedown. His Tenkoff remains high. They've now reduced his albumen replacement to 50% of the Tenkoff volume and given him a dosage of lasix. At 1pm Pacific they'll send an electrolyte test to the lab and look closely at values that indicate proper kidney function, specifically the BUN (blood urea nitrogen) and creatinine. Currently his BUN is high, at 64. With the reduced volumes and diaretics his BUN should go down, indicating that his kidneys are doing their job. If it stays where it is, it's another hint that his lower body isn't responding well to the new Fontan pressures. At that point, he'll likely head into the cath lab where they'll look to see if fenestration is an option. If it's not, we're back to Fontan takedown as the primary course of action. (Recall that Riley's surgeon is skeptical that fenestration will work for Riley's anatomy, and he reiterated that this morning.) The cardiologist assured us that everything isn't "hinging" on this test, but it's clearly important and we're keeping our fingers crossed. Best outcome would be a reduction in Tankoff and lowered BUN. If that happens, they'll probably stay the course and give it more time.
Riley has been in and out of light consciousness as they intentionally reduce his comatose state. He has been nodding his head yes (wanted a book) and shaking his head no (no ouchies) although his eyes haven't fully opened.
Tuesday, March 28, 2006
Key kidney test at 1pm Pacific
Posted by Ken Norton at 3/28/2006 10:04:00 AM
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8 comments:
Good to hear that Riley is responding somewhat with nodding!!! Keeping positive thoughts & strong praying continues!!!! Thank you again for the updates to the blog! Checking it every few hours. Hoping you both are able to get some rest through this as well. All good thoughts & wishes continue to come from Buffalo/Canada!
Take care...Melissa
Keeping our fingers crossed and thinking of you guys! Very very glad to hear further not-bad news. Don't know how much peace or calm is possible at such a time, but I hope those states will visit you occasionally and give you strength.
Positive thoughts and prayers being sent. We love you all and pray for continued, albeit slow, progress.
Stephen and Karen
Thanks for the update. You have been in our thoughts and prayers all day. Keep us posted.
Loveya
Grammy and Wayne
Naomi and I were looking at pictures of Riley today. We know it's nerve-wracking and exhausting for you, but hang in there. We'll be watching the blog tonight and checking it first thing in the morning.
Jonathan and Naomi
Ken and family - all our thoughts and best wishes are with you and with Riley. I'm so encouraged that he's off the ECMO.
Mark Slavonia
It is so good to hear that Riley has been able to be taken off some of his medication and that he is able to interact a little bit. If I can, I plan to come up tomorrow afternoon for a visit. In the meantime I will cooordinate with Babs.
I will pray that Riley's BUN goes down and his kidneys function well. Amanda had some problems with kidney function after her Fontan and was on peritoneal dialysis for awhile, but her kidney function came back and no permanent problems. Hang in there!
Linda
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