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Thursday, October 09, 2014
The good siblings
Posted by Mother in Chief at 10/09/2014 10:52:00 PM
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Riley Mackenzie Norton's update blog
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Riley's Medical Condition
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
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5 comments:
Well done indeed !!! I hope you all rest well tonight.
So thrilled and relieved to heart hat things went "really we'll"!
xoxoxo Babs
You're all rock stars in my book. I know Cassidy would love to visit Riley if and when he's up for it. No pressure - just let me know if you think that's something Riley would like. Hope you got at least a little rest last night. Big hugs and kisses to you all!!
oops...that last comment was from Gwynne...meant to sign my name : )
Great news!! You are all rock stars in my book!! Hope you can all pass out from the exhaustion now. Love and good thoughts from our family to yours.
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