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| Gell well soon Riley! |
When I spoke to the cardiologist last night she said, "Even though he's making progress, he is still a long way from being stable." That is becoming more and more clear unfortunately.
Riley Mackenzie Norton's update blog
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| Gell well soon Riley! |
Posted by Mother in Chief at 10/11/2014 08:04:00 AM
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
5 comments:
Holding you all in my heart and prayers ... Hoping today brings good news
Love and hugs during the next waiting game. Go Riley!!!
Praying for you and your family, Suzanne.
Riley is in our thoughts and hearts at the Udell home.
-Jeff
We are thinking of you today and hope things stabilize. Sending you our love. Tom, Joce, Naomi.
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