Riley continues to be on life support. He is still critically ill. Please continue to hold him in your hearts.
Thursday, October 16, 2014
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Riley Mackenzie Norton's update blog
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Riley's Medical Condition
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
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28 comments:
Know that this whole town of ours is rooting for him.
Keeping you all in my thoughts and sending Riley positive vibes! SF win is for him, a kid tough to the very core!
- Teacher
He most definitely IS in our hearts! Sending so much love and many many prays to Riley. I can't stop thinking about him!!
We are praying and sending love.
Hold his hand and talk to him through this.
Our family is sending you prayers and love!
Your community is pulling for you! We are holding your precious Riley in our hearts.
Holding all of you in the Light.
Prays galore in this house for you and Riley. I have been following your blog since his recent surgery. Me and my daughter were there and i saw you all there and i couldnt help but think this family needs a strong prayer. I light my candle and pray for you guys daily.
always, always, always!
You are all constantly in our thoughts. Sending all our love and positivity across from the UK. Keeping fighting Riley. Jay
Sending our healing thoughts your way.
Work Heart, Work
Heal Riley, Heal
Home Riley, Home
Please
Lots of Prayers and Positive thoughts your way!
Praying ♡♡♡
Keeping Riley in my heart and in my thoughts and sending positivity and hope.
Praying in NJ for your precious Riley and for all of you who love him so..,
Sending positive thoughts and healing wishes to Riley, you and your family. Hoping for the best!
Sending you so much positive vibes and prayers.
Asking the universe many time a day/night to send all of it's healing energy straight to Riley. Holding him and your family in my heart.
From one heart mom to another, I am praying for your family and your little heart warrior.
I am holding Riley and you in my heart, sending you every ounce of positive energy. Riley is obviously a very special person and a shining light.
Prayers for Riley
Dear Lord please give Riley the strength he needs to fight and pull through this war. Bless him from the bottoms of his feet to the top of his head with your precious blood. Hold his Mom in your hand to help her to continue to fight with her baby. Amen
We are praying for you Riley!!! <3
So very sorry for this turn of event for your dear Riley. As a mom who walked very similar shoes-take care of yourself during this time, if you get sick you can not be by his side. Eat even though you do not want to, sleep if you can, drink plenty of water and hold his hand for as long as you can. I will pray for healing for Riley and strength, peace and comfort for you. During those days, I prayed for healing and acceptance of what was best for my child- I pray that as you stand by the bedside your realize that you have done and continue to do everything humanly possible for your child.
Riley and Family...Praying for you to stay strong and get through this! We are following your progress and thinking of you! Keep fighting little man!...NJ HLHS Mom :)
Sending Riley and family strength and peace.
Riley and your whole family are in our prayers every night now. You don't know me but there are SO many people thinking of you all and praying for good news.
- LPCH ❤️ mom
Can't remember when I've kept someone I don't know in my thoughts and prayers as much as I've done in the past few days. Sending much love to beautiful Riley and his amazing family and friends. xoxo.
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