Riley's condition has spiraled downward and I cannot even comprehend, yet alone begin to explain, how horrible things are. He has lost circulation in his legs, they are performing an extremely risky procedure on them now. That is on top of the clusterfuck of the ECMO circuit. He may lose his legs, he may bleed out. To say that everything, EVERYTHING has gone wrong is an understatement. He is gravely, gravely ill. There is nothing else to say. So this is my last post for the foreseeable future.
That said, thank you for all of your love and concern and support.
Wednesday, October 15, 2014
Downward spiral
Posted by Mother in Chief at 10/15/2014 01:34:00 AM
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55 comments:
My heart is aching for you and I am sending love and prayers for a miracle
Suzanne
We are thinking of you every minute of the day. Willing that Riley will improve.
S&Jay XX
We are sending our love and prayers. -Jeff, Mitchell and Shannon
Lord have mercy on my friends. CHD sucks. <3 <3 <3
Riley and you remain in my thoughts and prayers - sending love.
We are praying for Riley.
Love,
The Ackburys xxo
Thinking of Riley and all of you, and hoping for a turnaround.
As a parent of a child who has undergone heart surgery, I know how terrifying this is. You are receiving all of our prayers, good thoughts and love. You will all make it through this healthy!
Holding Riley and you in my prayers today, Suzanne. Much love, Lisa Dettloff
You are all in our prayers and thoughts. Much love and blessings to you and your family.
Bianca Garilli and family
Praying every moment for Riley. Every moment.
Praying for you all! My heart hurts for you.
Hope and prayers and good thoughts.
Hoping and praying for Riley and sending you and your whole family love and support.
Sending you all our love and prayers.
We are sending our thoughts and wishes for strength to you all.
The Sharratt Family
Suzanne,
We just want you to know that the Central Middle School staff is thinking of Riley and hoping that he will persevere.
Holding your sweet boy in my heart and praying for a swift turnaround. If there is anything - and I mean anything - that me or my family can do to ease your burden an iota, please do not hesitate to mention it.
Jessika Welcome
Praying, praying. Every ounce of positive anything I have is going Riley's way.
Sending love, peace, good thoughts and prayer. Your team is here to support you.
Our thoughts and prayers are with you... the Samadani Family....
I haven't seen your blog until recent shares have been on my facebook feed from fellow heart moms. My heart goes out to you and your family and you will be in our prayers.
Thinking of you. Caring so much.
- thom
Thinking of you. Jennifer K.
Praying, praying, praying, praying. Please, Riley, come back!
Riley and you and Ken are on my mind and in my heart. Sending healing and love your way. Much Love, Ally Thorndike
Pleading with God to send a miracle to Riley. Huge Heart mom hugs. My heart warrior is also 11, he was born in Aug of 2003 & also had OH surgery at days old by Dr Karl at UCSF. My heart is aching for you all.
We are praying for warrior Riley. The Kadera's (Andrews cousin's family). We know Riley from many of Andrew's birthday parties. Xoxoxo
This is absolutely sad....Riley is in my prayers-as are his entire family.
There's nothing on earth I can say to make any of this better. I hate that anyone has to go through this. My thoughts are with you from Texas.
-Mom of a single ventricle toddler
Praying, praying for strength for Riley and your whole family.
Sending strength and prayers to Riley, you and your family.
What a beautiful boy.....recall meeting him years ago. I'm very moved by your blog and want you to know so many of us cry with you during this ordeal and wish to hold you up in our combined strength.
Sending constant thoughts of strength and hope.
Sending Riley, you, Ken and the rest of your family my thoughts, prayers and love. Although I haven't seen Riley in many years he holds a special place in my heart.
Lord Look with mercy on Riley and help him in this critical time. Please restore his health and give him the strength his body and soul needs at this moment.
I'm so heartbroken that things are not improving for Riley. You one amazing boy and you are an equally amazing mother. Everyone at BA has you, Riley, and your family in our thoughts and prayers.
Sending positive thoughts your way!
Our thoughts and prayers are with you.
My love is with you and Riley
We are praying with all our hearts.
The Reich-Meyer family
God bless you all. What a beautiful video, what a beautiful child. Such a loving family...I will pray for him.
The Zellmer Family is praying for Riley. Come on Riley your a Camp Taylor Warrior. You can do this!
The Zellmer Family is praying for Riley. Come on Riley your a Camp Taylor Warrior. You can do this!
praying for riley.
I was GLUED to your blog when Riley was younger. Not sure how it got away from me as you are still a NorCal family. I am so very sorry, concerned, worried, and upset for your family right now. Thinking and praying for you. He has overcome major obstacles before, let's believe he can do it again. Heart Hugs!
Your courage and candor inspire. You have us all by our hearts (as we pray for Riley's). I hope you are aware, on some level, of the ever-swelling community support for Riley. He is truly loved.
Reading your blog, Riley has proven over and over that he has amazing stamina. Make sure that you and the rest of your family get sleep. He is going to need you over the next few days.
Prayers ♡♡♡
Sending all of the prayers and healing thoughts I have your way.
Thinking of you, your family and your sweet boy. Hoping for the best.
We have been thinking and praying for your family all day. Much love. Bianca
Love and prayers out to Riley, you, and your family. You are not alone.
There are no words. Please feel the support you have amongst all in our community.
praying for Riley and sending love and prayers to your family. The town of SC is holding you all close to our hearts and sending positive thoughts and healing.
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