We're back in the Bay Area after our trip to Baltimore, Washington D.C. and Philadelphia. We'll have a complete Wish wrap-up with lots of photos soon, but in the meantime we wanted to whet your appetite with these.

Riley Mackenzie Norton's update blog
We're back in the Bay Area after our trip to Baltimore, Washington D.C. and Philadelphia. We'll have a complete Wish wrap-up with lots of photos soon, but in the meantime we wanted to whet your appetite with these.
Posted by Ken Norton at 8/13/2007 01:59:00 PM
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
6 comments:
AWESOME!!!! It was certainly a wonderful and memorable time together. Grammy Peg
Riley looks absolutely awesome!Hope you were all able to relax and by the look on his face...it all seems to have agreed with him!
Love to all,melinda
Riley looks fantastic!! It's so great to see him having a good time and enjoying being a kid!! Please, please, please let's get our kiddos together in the next few weeks!!!!
take care,
Gwynne
It was great to meet up with you guys again at the wedding. Suzanne, please let us know when you plan the Buffalo trip and we'll set a date for the Strong Museum.
Heather
hwilber@rochester.rr.com
I took care of Riley at UCSF after his Fontan...he looks fantastic. I am so happy for him and the entire family!
Angela
It sounds like you had a great time on your make a wish trip! I'm so glad things are settling down for your family. Also great to hear that the PLE is in check. Can't wait to see more pics!
Andrea
Post a Comment