The chest tubes didn't put out any fluid overnight. Riley was given another chest x-ray this morning and the doctors will check to make sure everything looks good. Yesterday they discontinued the Diuril and today they'll back Riley down to two doses of Lasix instead of three. If everything goes well, they might remove the chest tubes tomorrow. In that case, we'd probably get to go home on Monday. Nobody goes home on Sundays and they'll want to monitor him an extra day anyway. Of course, if the chest tube output picks up now that they've reduced the diuretics, all bets are off. Same deal if the chest x-ray shows backed up fluid.
Two days ago Riley made himself a necklace in the playroom with letters spelling "Riley Norton." He picked out and arranged the letters himself and even threaded them (all we did was tie the knot). Last night he decided he wanted to go to the playroom again to make a necklace for Daddy. He also made one for Mommy.
Just now we came back down to the playroom where Riley wanted to play with cars. However, another kid was playing with them so Riley sat down to use playdough. When he noticed the other kid had finished with the cars he said "I can play with cars now" and before he realized it he'd stepped off his chair and was standing. I held his hands while he walked ten feet to the cars where he promptly sat down on the floor and began playing. More evidence that Riley is physically capable of more than he's mentally prepared to do. Hopefully when those tubes come out we'll make good progress.
Friday, April 21, 2006
Walking
Posted by Ken Norton at 4/21/2006 11:12:00 AM
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9 comments:
You don't know me, but I've been cheering Riley on for awhile now. Reading this gave me tears in my eyes - his walking is such great news! What a strong guy, in so many ways :)
Riley and all of you continue to be in my thoughts and prayers!
Yippeee! Sounds great to me. It is great to hear that he is chipper and wanting to do all those fun things (normal Riley). Glad, also, that he is moving around and feeling more confident about his abilities. Prayers continue for going home very soon.
Love you - Karen and Stephen
That is wonderful that Riley walked. I remember the first time Amanda walked after her surgery I cried! I hope you all get to go home soon.
Linda
Fantastic fantastic fantastic.
Fingers crossed for a quick homeward journey.
All our love
The Lawrences
WooHoo! Great to hear about the progress with the drainage. Maybe Riley can make a necklace for his girlfriend Riley T. We hope to be passing you in the halls Monday...us arriving and you leaving!
Love, The Thompsons
Yeah! We hope you get to go home on Monday! What fabulous progress, it is so good to hear we have our Riley up and about ( almost!) We wish you lots of love and continued good thoughts from Costa Rica! I have finally been able to post something since this hotel has internet access. We leave for home tomorrow, so hope to see you soon.
Love, Paul, Lisa and Matthew
Great news ! What a smartie pants he is (as are his parents). I am so hoping that you guys leave for good this Monday !! We will have to celebrate when I see you !
Joce, Tom, Naomi
what STRENGTH your little boy has!! Not to mention Mom and Dad...."4-2-4, goin home for shore, 4-2-4, not comin back here no more".......our thoughts and prayers remain with you!
the EDD's
Awesome news to hear upon our arrival at Auntie's in Baltimore. That is great. He is so smart too, of course we all knew that already. Love the necklaces he is making. That is AWESOME!!!!
Hope you get to go home Monday...a month later!! WOW
Loveya
Grammy and Wayne
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