We never posted an update on the water blisters and sweating. Late last night the ICU fellow came by and looked at Riley. He didn't have a conclusive answer for the blisters but suspected it might be heat rash, a virus or some allergic reaction to the tape. None of these explanations made perfect sense so he sent a venous gas and a lactate test to make sure it was nothing heart related. Everything looked good so the decision was to just leave it and let it heal. His face isn't as red today but the blisters are still there.
Riley hasn't been having the sweats at all today, and coincidentally he also went back on the morphine. The doctors seemed to like our guess that the sweating might have something to do with morphine withdrawal. So there you have it.
Tuesday, April 04, 2006
Update on blisters and sweating
Posted by Ken Norton at 4/04/2006 06:38:00 PM
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9 comments:
OK then, jeez all your family and friends so go into the med field don't you think? Glad it seems to be working out ok. Hope you all can get some sleep tonight. Who's on duty? Wish I could do my part tonight!!! HUGS ALL AROUND
Grammy Peg and Wayne
Good to hear that there could be an explanation - but better to hear that things are better. Has R been more interested in life yet? Is he a little less grumpy. It was great to see a picture of you both S. Still thinking of you all. Hope you're getting some rest.
Loads of love
Jude, Christian, Ruby and Elsa
Yeah, we figured that the sweating and blisters was not a concern when you didn't mention it in your earlier post. Whatever it was, it seems like they've ruled out anything heart related, which is a relief.
BTW, what a beautiful picture you posted today. It's nice to see that you can hold him in your arms now, even if he's still sedated.
I agree that you all deserve honorary MD degrees after all that you have been through and all your good guesses. I am glad that the latest tests are looking good and I second Bab's suggestion to get plenty of rest and drink your electrolyte shakes. Take care too daddy and grampy.
Jocelyn
it's funny for us... isaac having a morphine addiction was the least of my worries. the fact he had an addiction meant he was alive, and for that i was ever so thankful.
however, the docs didn't stop him cold turkey of course. but then he was on large doseages for nearly two weeks. he was awake and smiling on a dose that would knock an adult out.
also, isaac had various rashes appear on his body. and his skin shed. and he lost a lot of hair. all of this is very traumatic on the body and it seems to ripple through the body over time as the body is recovering.
so this could be riley's body's way of dealing with the trauma he's been through.
Sarah
i also just want to say... doctors are good at what they know. and there sure is a lot they know how to do, like perform a Fontan surgery. or save our kids on the ECMO. but, the human body was not created by man. it is very much a mystery. why riley was born with a defective heart, no one will ever know. why he has bumps one day and not the next, who's to say? there are so many variables. variables we know of and variables we cannot fathom. and we cannot expect doctors to know all or even more than half of the answers to our questions. i like a doctor who can say, "your guess is as good as mine".
i guess i will get off my highhorse here... but hey, we can't expect the docs to know the answers. and they're doing the best they can.
Sarah
I know you guys don't know me, but I have been following Riley's progress ever since I found your blog from my sister-in-law's blog (An Unsealed Room. My husband thinks I am nuts because I pounce for his laptop every evening (we live on the east coast) to see how, "my boy in San Francisco" is doing-and I'm glad the news has been good this week. You are all in my thoughts. I hope to read that Riley is home soon.
I, too, have been following Riley's progress from afar. We live in the bay area and I have a 14 month old who will have his second heart surgery this summer (+ 1 therapeutic catheterization) at the other regional medical institution with a tree for a mascot.
So many of the emotions that the two of you have expressed really resonate for me, especially the mix of feeling so fortunate at the same time feeling sorrow for the life your child will never have and for never having that carefree newborn experience.
Go, Riley, Go! Hoping that all of you can return home soon and resume enjoying life.
Hello and best wishes to Riley on his recovery. Today I found a link to your other blog and then stopped by here. I will shoot up prayers for you when you come to mind. After the death of our 4 year old daughter, we spent weeks in the hospital with her sister and my husband. It felt like an eternity! I know how draining a hospital setting can be and I hope you are able to keep your own spirits up at this time. Our situation is different- our one daughter has ongoing rehab and therapy from a brain injury. I blog about our life and the journey we've had for four years. Maybe you'd like to stop by and take a peek when you have a free moment online. I wish you all the best. In your pregnancy too! Sweetly...
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