Riley is still draining from his new pigtail drain. It has slowed from the initial pocket, but it is still steady. In addition, doctors noticed a dip in his protein and albumen levels. As a result, he was given 60 milliliters of albumen this morning in an effort to bump his levels up.
Physical therapy has been slow. Getting him out of bed and into a chair today was a major feat. He is so weak and he felt especially light to me. We are grateful that Riley had some reserves as far as weight goes. But it's hard to watch him wither away. We will keep working on it, but he needs to eat in order to have energy, and his eating is still minimal as well. The same plate of mashed (unsalted, unbuttered) potatoes and steamed broccoli arrives at every lunch. He does not eat a single bite. Dinner is some plain, grilled tofu and mushy carrots. No wonder he's not eating much. I'm going to get a jar of fat-free tomato sauce from the grocery store and hopefully the kitchen can manage some plain pasta. I'm sure he'd like a little variety. Fortunately, we found some non-fat bleu cheese dressing that he like with raw carrots and cucumber. Sadly it's not very caloric. He's also been eating the tofu hotdogs that I've brought in with ketchup.
Wednesday, April 12, 2006
Protein, albumen low--getting replacements
Posted by Mother in Chief at 4/12/2006 02:39:00 PM
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3 comments:
I know how much he loves his bleu cheese dip...soon he will be able to eat all he wants of that. In the meantime let's hope the low fat helps him eat something. Does his appetite have anything to do with with the low protein/albumen levels? Hopefully we will get to talk on the cell this weekend. Love you all and miss you so much.
People, complete strangers, asked about him every day. Grammy and Wayne
Let me know if I can bring anything on Friday that he might eat that has some calories but no fat ...I like Babs idea about bananas. How about nutella on bread ? Joce
Hang in there little man Riley!!! We are always thinking about you.
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