Riley's blood pressure continued to drop. An x-ray showed a large quantity of fluid building up under his left lung, and a new drain was inserted into his side to drain the fluid. The hope was that without the fluid, his blood pressure would return to normal levels. It did not. Dr. Tarnoff gave us two scenarios. First, the hepatic veins were blocked, which means they would need another surgery to unblock them and reattach. Second, Riley's body did not respond well to the Fontan. As a result they would need surgery to go in and create a hole to balance the pressure in his lungs. I apologize for my limited knowledge at this time. We are waiting for news. Riley has been in the cath lab for over an hour now.
Friday, March 24, 2006
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3 comments:
Did they do the Fenestration? Or is that what they may need to do? When Amanda had the Fontan, she did not respond well and they took her back to surgery to do the fenestration and then a year later she had it closed up using the Cardioseal in the Cath Lab. Let me know if I can answer any questions. You will continue to be in my thoughts and prayers.
Thank you so much for taking the time to update us. We know it's probably not the first thing on your mind right now and we really appreciate it.
Keep the faith. You have the very best people in the world working on him, and Riley is a fighter. Even if he has to have another surgery, as hard as that will be on everyone, he will do fine. He's a tough little boy.
We all continue to pray for all of you.
WOW, not sure what to say, just that our prayers are with you all right now. Wish there were more we could do but all there is is this blog dropping short notes of encouragement and hope.
Thankyou so much for keeping us posted on everything that is going on. It must be very difficult to have to relive all that you are going through by keeping us posted. It is however much easier then talking to many people over and over again.
Keep up the good spirits there and we will do the same here in Canada.
Thinking of you all.
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