Nothing is planned for Sunday evening. The doctors have turned the ECMO flows back up so that Riley's heart can rest - there is no point asking him to work when he will need to work so hard tomorrow. Tomorrow at about 9am they will attempt to take Riley off the ECMO. We've been warned that it will be a difficult day and to expect Riley to be very sick as his heart works to take over the load. It's going to be a very long day so we're going to try to get some rest.
Sunday, March 26, 2006
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14 comments:
Words don't seem capable of expressing the magnitude of feelings at this time. We are thinking of Riley all the time, sending him all our love and hoping and praying that he will come out on top.
Ruby picked out her favourite Thomas DVDs for Riley today and is ready to send them in whenever he needs them!
You are doing an amazing job for him, I admire you all greatly. As ever, if you need someone I can be wherever you need me in no time flat.
Jude, Ruby, Elsa and Christian.
Hey peeps, we miss you already. I feel so lucky that we could have dinner with everyone and got to see Riley too. I wish we could be there more. Thinking about you all the time, especially tomorrow morning. Lots and Lots of Love H, R and Jxx
Hope the resting did happen--you must be so exhausted. Glad there were some encouraging starts today. We'll be sure and think of Riley around 9 tomorrow and after.
More good thoughts of health & recovery.
Ken, Suzanne, Riley, and family: We just wanted say to good morning, good luck, and God bless you all during this very stressful day.
Ken...
this is Mark g.
my full prayers go out to you and Suzanne...
I am so sorry that distance and time has left me ignorant of all these developments. Please, call me at 917.776.5178 if you get a chance.
god bless.
Ken And Suzanne,
I am so sorry that things are not going well with Riley. I didn't know until this morning that Riley had gone in for another surgery.
Alicia and I are thinking of the three of you and hope everything turns out ok. I can't even imagine what this must be like for you, Suzanne and Riley.
Always thinking of Riley during this difficult time. I wish I could be out there for you.
-Jeff
We've been quietly following along and can't seem to find the words to express... please give Riley our love and tell him we're so impressed with how brave and strong he is.
Love you guys!!!
Nicole, Blake & Owen
Again, my prayers and thoughts are with you constantly. It seems the sentiments are the same with those of us who cannot be there - helplessness. However, prayers are the ultimate gift at this time. I love you and pary for positive progress for our little hero.
Love, Karen
Suzanne and Ken,
I sent out a braveheart email, so there are a lot of prayers and encouraging thoughts for Riley and the 2 of you. Hang in there.
Linda
Again, we are thinking of you all constantly.........hoping for health and recovery to come soon. Thank you for taking the time to send out information during such a difficult period. Riley is very lucky to have such amazing people as parents and of course we're all very lucky just to know him. What fighters these kids are. We know today will be a big fight for little Riley, and we'll be sending him (and you!) nothing but positive thoughts all day. Please take care of yourselves.
Gwynne, Patrick, & Cassidy
Riley's very lucky to have such capable and informed parents to help him through this. And it's great to read that you seem to have a strong support system to help you get through it.
We're thinking of you often.
My thoughts our with Riley this day, and with his parents. Just wanted to thank Karen and her Mom for updating me on his condition. Best wishes.
(Karen's Stephen)
We have been followingg the reports day to day. Eva and I (Bill) are near 85.
We haveevery input up 'till recently.
Am praying things will work out as planned.
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