Let's see, what do I have to report. The drainage is down from the previous hour, so that's a good sign. His magnesium levels are low, so they're administering some. Magnesium is essential to the regulation of heart rhythm. Other vitals are in the expected range.
Riley is clearly in pain and obviously uncomfortable. His arms are now restrained to prevent him from pulling at the breathing tube. He's gotten a bit more morphine, but again, in this transition period it's more important that his body start recovering than that he remain pain-free. It's frustrating. He has communicated with us some, shaking and nodding his head when asked questions (he wanted us to read I Love Trains but not Katy No-Pockets; he wanted his Mommy). The nurse predicts that it will be a "stable but busy night". Hopefully the breathing tube can come out in the next 12 hours. I think Riley will be relieved to be able to cry and speak.
Many of you have asked for the mailing address, here it is. If I recall correctly, patients in the ICU cannot receive flowers, plants or latex balloons.
Riley Norton
Pediatric Cardiac Intensive Care Unit
UCSF Children's Hospital
505 Parnassus Ave, 7-East
San Francisco, CA 94143
3 comments:
WOW, sounds like a very amazing young lad, talking already and very alert.
I called to let u know we are thinking of you and left a message while u guys were all going through Hell waiting at the hospital.
Our prayers are with you.
Brenda From Canada
That Riley guy is wicked tough!
So is mom and dad.
Positive energy rays from Boston are coming your way, like always.
-jeff
Well...that's overwith!....the surgery I mean. Sounds like he's cruising towards extubation and soon the chest tubes will also be out. I"m sure they'll address this at rounds this morning. Did they need any of the blood donated during the procedure? (other than the FFP post-op).
Lot of love!!
keep us posted
-Dave
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