Riley Mackenzie Norton's update blog
We're home, Riley's in bed and sleeping soundly. He got a little punchy there towards the end, I think he'd had enough. They gave him some more Tylenol for the pain which helped him doze off on the drive home. Why do we always believe them when they say "we'll get you out of here by 8 o'clock?"
Posted by Ken Norton at 3/03/2006 12:29:00 AM
Riley was born with congenital heart defects that were detected shortly after birth. He has a condition called heterotaxy which means his internal organs are reversed. His heart is on the right side of his chest. He is also missing a spleen, a cardiac-related condition called asplenia syndrome. Riley's heart only has a single ventricle and a common valve. Before treatment, oxygen poor blood mixed with oxygenated blood causing severe cyanosis ("blueness").
There is no cure for Riley's disease but a three-stage palliative treatment is commonly performed. A few days after birth in April 2003 surgeons at UCSF performed the first stage, a BT Shunt. In May 2004 surgeons performed the Glenn Procedure. In March 2006 Riley underwent the Fontan Procedure, the third stage. Riley developed protein losing enteropathy and in March 2007 received a Fontan fenestration which failed, followed by the Fontan takedown in April 2007.
In 2014, Riley began developing arteriovenous malformations in his lungs. That's an indication that his Glenn circulation is not holding up. In October 2014, Riley went to Stanford for a 1.5 ventricle septation repair.
1 comment:
Glad to hear you're home now and everything went smoothly. We're thinking of you guys and sending lots of love.
Nicole, Blake & Owen
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