It's been more than two full days since Riley was released from UCSF following his heart cath. The doctors expected a mild fever and some discomfort as his body adjusted to having the 18 platinum coils in his heart. His fever continues to hover around 100 degrees, give or take a degree, depending on where he is in the Tylenol cycle.
Also, he has not eaten a meal since Wednesday night--the night prior to the procedure. The best attempt was a plum and a couple of Cheerios Friday morning. Today he's eaten two bites of cheddar cheese, a couple of sips of chocolate milk, and a couple of bites of yogurt. He's even declined ice cream. Getting him to drink has also been a challenge and he has had few wet diapers. Earlier this evening, I spoke with one of the fellows who saw Riley at UCSF and she was also concerned about his lack of appetite and his lethargy. She increased the frequency that we're giving Tylenol to help alleviate the soreness so that he'll feel better about eating. I need to give her an update in the morning. If he doesn't improve, she wants us to bring him in. We're concerned that any further delay in him recovering from the cath will cause them to postpone surgery.
In addition to feeling sad and uncomfortable, he also seems to have a stiff neck. He winces whenever he needs to sit up, lie down, or roll over.
Saturday, March 04, 2006
Fever, soreness lingers
Posted by Mother in Chief at 3/04/2006 09:41:00 PM
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2 comments:
Sounds like you guys are having a rough night. I too would be concerned about him getting dedhyrated. Have you tried Pediasure (High calorie liquid drink that come in different flavors)at least if he drinks he'll get some calories in him too.
The stiff neck may be due to the catheterization site...i believe one was in the leg and one in subclavian vein at the neck. I'm sure you guys have thought this over already...but i figured i'd throw it out there.
Hi Suzanne, Ken and Riley,
We miss you and are sending our thoughts prayers and love to you during this challenging time. Thanks for keeping us updated- Riley sure is a strong little boy. We are praying for the best, that he will be feeling better soon, and the three of you will be happy and well at home for some good long-awaited family time.
We're tinking of you daily and send our love,
Amy, Jay, Ella and Henry
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