Monday, March 27, 2006

ECMO turned off, cannulas removed

Riley was taken off the ECMO machine around 10:25 am, and is currently stable. The cannulas are out. They cannot leave them in his neck for too long of a period without functioning because clotting becomes a concern. We've been told that the next 24 to 48 to 72 hours are critical for him to show that he can adapt to the flow of the Fontan. He remains on the pacemaker which is keeping his heart rate at 124 bpm, and they will continue to monitor his blood pressure, liver function, urine out-take, blood gases, etc., as signs to whether he is "turning a corner." Doctors say that the success rate is about 50/50 at this point. If he starts to trend downwards, they will schedule the Fontan take-down. He will not be put back on the ECMO, except as a means to stabilize him while they schedule surgery.

Thanks again to our blood donors. Riley received one unit during surgery. But since then, he has received at least three transfusions, as well as several batches of platelets.

3 comments:

Anonymous said...

Thanks so much for he update. We are thinking of you all constantly. Do you need anymore blood donors? Matt can put the word out at Electronic Arts, etc. Let me know if this is a need. Also, how are you doing for meals? Can we call your parents to coordinate bringing you all anything you need? If so, email me your dad/mom's phone #. xoxo, Court (courtney@respectgirls.com)

Anonymous said...

Hi there you two - hopefully you recieved my email on your regular email - we continue to pray for every little detail we read about and strength for the two of you. I know this is such a scary waiting game - I wish I could come down just to give your guys hugs! I noticed someone was offering to help out - take them up on it! Thanks for keeping us updated. My heart is with you....Jana

Anonymous said...

Hi guys,
Dad continue to update us. We are praying here that Riley progresses well in the next few days. He is and you are in our thoughts and prayers constantly.
Much love, Karen and Stephen